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House Hansard - 80

44th Parl. 1st Sess.
June 2, 2022 10:00AM
  • Jun/2/22 2:07:45 p.m.
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Mr. Speaker, June marks the beginning of a month of awareness for amyotrophic lateral sclerosis, or ALS, a disease that currently has no cure. Unfortunately, there is still no treatment to reverse the progression of ALS. As one can imagine, this is a grim reality not only for patients, but also for their loved ones. I wish to thank the researchers who continue to work together to change the course of this disease. They provide hope in this respect. I would also like to thank the family members, the caregivers, nurses and other individuals who care for these patients. Their services are indispensable and sincerely appreciated. If there is one lesson we can learn from COVID-19, it is that collaboration is key to combatting disease. Imagine if we applied the same strategy to combatting rare diseases and to finding treatments for rare diseases like ALS. We must do better. I want to thank everyone involved.
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  • Jun/2/22 2:16:59 p.m.
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Mr. Speaker, June is ALS Awareness Month, and since today is Lou Gehrig Day, I am calling on each of us to recognize how important it is for Health Canada to speed up its review of an Amylyx treatment for ALS. In the member's statement I made last year about this day, I shared my experience as a caregiver for my father, who had this disease for 20 years. I expressed hope that a treatment capable of slowing its progression would be found. We are close. I urge Health Canada to work even harder to get this treatment approved quickly. Time is limited. To all those with ALS, to their loved ones and to advocacy organizations, I say keep fighting.
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