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House Hansard - 320

44th Parl. 1st Sess.
May 29, 2024 02:00PM
Context: House Hansard - 320 - May/29/24
Mr. Todd Doherty
  • May/29/24 10:27:33 p.m.
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  • Re: Bill C-64 
Madam Chair, would Bill C-64 provide for any government funding for any other rare diseases?
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Context: House Hansard - 320 - May/29/24
Hon. Mark Holland
  • May/29/24 10:27:43 p.m.
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Madam Chair, drugs for rare diseases are under a separate action, and that money is available: $1.5 billion will be spent.
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Context: House Hansard - 320 - May/29/24
Hon. Mark Holland
  • May/29/24 11:10:10 p.m.
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Madam Chair, in the first order, I want to say to the member and to Noor and her family how sorry I am that she is going through this, and how dreadfully difficult it would be to get that diagnosis and live with that condition and then have to worry about medication on top of it. We do have action on drugs for rare diseases. We are negotiating now with provinces to try to identify what drugs we can look at to help folks who have a rare condition and need rare drugs so they can get help dealing with these extraordinary costs. One of the reasons it is so important that we take the collective action we are taking with pharmacare and take these steps is that we need to get to a world where everybody gets the medication they need and they are not in the kind of situation that the member described Noor is in.
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