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Decentralized Democracy

House Hansard - 321

44th Parl. 1st Sess.
May 30, 2024 10:00AM
  • May/30/24 6:54:30 p.m.
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Madam Speaker, it is hard to know where to begin with the speech the parliamentary secretary just gave. I have heard some of this before at rare diseases conferences. I just want people at home to know that not a single rare disease drug would be paid for through this legislation. That is for starters. It is only mentioned once in this entire piece of legislation. Second of all, the Canadian drug agency is not created. CADTH is being repurposed and renamed into the CDA. My question, though, is specifically on rare diseases because the parliamentary secretary mentioned them. Of the $1.5 billion announced all the way back in 2019, $1.4 billion is still left unspent. Could the member tell me which rare disease drugs were covered between 2019 and today, which patients received the drugs and for what conditions?
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  • May/30/24 7:09:46 p.m.
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Madam Speaker, that adds a bit of spice to our evening, obviously. As I was saying, we asked for the right to opt out with full financial compensation. That should have been granted, in the interests of patients, those who are ill and workers. However, it was denied by the Speaker on the pretext that it requires royal recommendation, when the only thing Quebec wants is to have its share of the funds that are already allocated within this bill. This shows just how institutionalized and deep-seated Ottawa's desire is to crush Quebec, to crush Quebec's desire to act in its own areas of jurisdiction and to exercise authority within its own areas of jurisdiction based on its preferences, particularly when it comes to pharmacare. It is in the genes of Ottawa's politicians, in their DNA. What is happening here today is so unfortunate. It is unfortunate because the interests of patients and Quebeckers are coming second. We should be greatly saddened to see that people's health is being politicized for electoral purposes. That should never be commended.
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  • May/30/24 7:57:37 p.m.
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  • Re: Bill C-64 
Madam Speaker, we are talking about pharmacare and the member is talking about cutting the carbon tax. Let me read a quote from Linda Silas: “Every day, nurses witness the profound impact of poor access to medications on their patients’ health.” She has addressed this to all members of Parliament. Further down she says, “Get it done for the sake of our patients, for the future of our health care system and for the well-being of our country. VOTE “YES” ON BILL C-64.” Linda happens to be the president of the Canadian Federation of Nurses Unions. Could the member provide his thoughts on why the Conservative Party is going against our professional health care providers, who really want to see this legislation pass because they understand it?
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  • May/30/24 8:42:47 p.m.
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Mr. Speaker, with respect to all Canadians such as physicians, nurse practitioners and pharmacists who are listening and who are out there prescribing medications this evening, I find it fascinating that the member would be suggesting that their appropriateness is actually inappropriate and that we need the government now to tell physicians what to prescribe. Think about someone with hypertension, sitting in their family doctor's office if they are fortunate enough not to be one of the seven million people without a family doctor. What is the family doctor going to do? Are they going to call the “1-800-who-cares” phone number provided by the people who cannot even get them a passport, and wait on hold while they say which medication should be prescribed? I find that to be an absolutely terrifying prospect for Canada's incredibly well-trained frontline prescribers in this country who have the independent ability to make those decisions, the best decisions on behalf of the patients, many of whom they have known for an incredibly long time. Maybe the member could answer this: Would they now be setting up a 1-800 number for doctors to ask which medication should be prescribed? Perhaps, as I mentioned, they could call it “1-800-who-cares”.
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  • May/30/24 9:12:06 p.m.
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Mr. Speaker, for constituents at home and Canadians wondering whether any rare disease drugs will be covered by anything, as the member mentioned rare diseases, not a single medication will be covered. In fact, the government's own 2019 budget announcement of $1.5 billion for rare diseases has not covered a single medication for any patient in Canada. I would ask the member the same question I asked the parliamentary secretary. How many medications has the 2019 budget announcement covered? It has been five years. How many Canadians with a rare disease obtained their medication that was covered by the government's announcement of the $1.5 billion for rare disease patients?
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  • May/30/24 10:59:00 p.m.
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Mr. Speaker, the member did mention rare diseases, and I cannot pass up the opportunity to clarify a couple of things. It is only mentioned once, in clause 5 of the legislation. To all my constituents back home, and all the rare disease organizations and patients across the country, not a single person will have their rare disease drugs paid for by this legislation, not a single one. It is not in the legislation. The 2023 announcement that the government just made is a reannouncement of its 2019 announcement. Some hon. members: Oh, oh! Mr. Tom Kmiec: Mr. Speaker, the NDP caucus is heckling me once again. I know the New Democrats get really upset when I raise this. The government is the one that actually cancelled the original rare disease strategy in 2016, and at the time, the head of the organization called it “the kiss of death” for rare disease patients. Does that member agree?
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