SoVote

Decentralized Democracy

Ontario Assembly

43rd Parl. 1st Sess.
August 24, 2022 09:00AM
  • Aug/24/22 10:50:00 a.m.

My question is to the Premier.

Charles de Lint is a famous writer back in Ottawa. MaryAnn, Charles’s partner, was his first reader, his editor and his business manager. She has always been there offering Charles crucial support. But MaryAnn has been in the hospital since September 6, 2021. She contracted a rare disease and is now intubated, living on a ventilator, and has very limited movement. In order to make a full recovery, MaryAnn will need more therapy and more time in the hospital—more than our system at the moment can provide. So her family and friends have launched a GoFundMe in the hopes of raising money for her long-term medical care.

Can the Premier guarantee that MaryAnn and her family will never be billed for her hospital bed? Or will GoFundMe campaigns become the norm for rare disease patients in Ontario?

Charles and MaryAnn are incredible artists. Both of them have given this province gift after gift after gift. But they can’t afford the private treatments that MaryAnn needs right now; frankly, in Canada, you shouldn’t have to. Their friends have launched a GoFundMe campaign.

Is that what Ontario has become for patients with rare diseases? Has our Ministry of Health become a ministry of fend-for-yourself?

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  • Aug/24/22 11:00:00 a.m.

My question is to the Premier.

Michelle and Tyler Sanders are wonderful parents to Everett, a six-year-old boy from my riding of St. Catharines. With disabilities such as quadriplegia, cerebral palsy and autism, Everett needs to be carried up to his bedroom every night for storytime and carried down again every morning to get ready for his busy day. To support Everett’s independence as he gets older, Michelle and Tyler are hoping to install a stairlift in their home. After spending months securing funding and looking into government programs, the family is still short, so they have resorted to setting up a GoFundMe page with a goal of $20,000.

Premier, why does the quality of life of special-needs children and Ontarians living with disabilities have to depend on how much their parents can afford, and rely on GoFundMe pages?

Premier, Ontarians should not have to resort to GoFundMe pages for financial assistance with basic necessities.

Will you commit to ensuring that every family can get the devices that people living with disabilities need to live a safe and independent life?

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