SoVote

Decentralized Democracy

Ontario Assembly

43rd Parl. 1st Sess.
August 24, 2022 09:00AM
  • Aug/24/22 10:50:00 a.m.

My question is to the Premier.

Charles de Lint is a famous writer back in Ottawa. MaryAnn, Charles’s partner, was his first reader, his editor and his business manager. She has always been there offering Charles crucial support. But MaryAnn has been in the hospital since September 6, 2021. She contracted a rare disease and is now intubated, living on a ventilator, and has very limited movement. In order to make a full recovery, MaryAnn will need more therapy and more time in the hospital—more than our system at the moment can provide. So her family and friends have launched a GoFundMe in the hopes of raising money for her long-term medical care.

Can the Premier guarantee that MaryAnn and her family will never be billed for her hospital bed? Or will GoFundMe campaigns become the norm for rare disease patients in Ontario?

Charles and MaryAnn are incredible artists. Both of them have given this province gift after gift after gift. But they can’t afford the private treatments that MaryAnn needs right now; frankly, in Canada, you shouldn’t have to. Their friends have launched a GoFundMe campaign.

Is that what Ontario has become for patients with rare diseases? Has our Ministry of Health become a ministry of fend-for-yourself?

215 words
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