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Decentralized Democracy

House Hansard - 321

44th Parl. 1st Sess.
May 30, 2024 10:00AM
  • May/30/24 2:07:58 p.m.
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Mr. Speaker, May 12 was international myalgic encephalomyelitis awareness day. I would like to acknowledge the approximately two to three million Canadians now living with this debilitating illness. ME, formerly known as chronic fatigue syndrome, is a devastating, chronic, complex, multi-system illness. It occurs in children, adolescents and adults of all ages and backgrounds, and three-quarters of people living with the illness are women. Up to 75% are unable to work, and one-quarter are consistently bed-bound or housebound. ME is an urgent health crisis, with research showing that 50% or more of those with long COVID go on to develop ME. People with ME are suffering and desperately want their lives back. There is currently no cure or approved treatment for it at this time. It is therefore crucial that Canada take action, increase funding for ME research and provide resources for national education and training.
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  • May/30/24 10:48:12 p.m.
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Uqaqtittiji, Jordan's principle is such an important story to always remember because the implementation of it allows payments to be made up front and for the jurisdictions to discuss who ends up paying for it in the end. We have an opportunity with the pharmacare act for women and gender-diverse people to get their contraceptives immediately, without having to worry about whether it is going to be the provinces or the federal government who pays for it, as well as for people to get their diabetes medication. I know this kind of system can work because we see it in Jordan's principle, especially when we have discovered, through that program, the atrocities indigenous children are forced to experience and that treatment will happen immediately. We need that same kind of foundation through this pharmacare program.
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