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Brian Saunderson

  • MPP
  • Member of Provincial Parliament
  • Simcoe—Grey
  • Progressive Conservative Party of Ontario
  • Ontario
  • Suite 28 180 Parsons Rd. Alliston, ON L9R 1E8
  • tel: 705-435-4087
  • fax: 705-435-1051
  • Brian.Saunderson@pc.ola.org

  • Government Page
  • Mar/6/23 10:30:00 a.m.

On February 28, we celebrated Rare Disease Day in Ontario and internationally, and I want to recognize two hard-working constituents from my riding of Simcoe–Grey: Beth and Madi Vanstone from Beeton, Ontario. For over 10 years, the Vanstones have been coming to Queen’s Park advocating for people living with cystic fibrosis.

Through their dedication, perseverance and advocacy, our government was the first province in Canada to expand coverage for Trikafta to include all Ontarians aged six and over through our publicly funded medical drug program. This transformational medication has built on the effectiveness of predecessor medications Orkambi and Kalydeco to improve the quality, health, and length of the lives of people afflicted with cystic fibrosis right here in Ontario.

One in every 3,600 children born in Canada has cystic fibrosis, and there is still no cure. More than 4,300 Canadian children, youth and adults with cystic fibrosis attend specialized CF clinics today.

I was happy to meet the Vanstones last week for Rare Disease Day to discuss the need for a rare disease strategy in Ontario. I recognize there is more work to do, and I look forward to continuing working with Beth and Madi and other stakeholders and the members of this House to ensure that life-saving medications for rare diseases are available to all Ontarians.

223 words
  • Hear!
  • Rabble!
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